Donated Databank of Clinical Free Text

Building on our previous work which involved a series of focus group interviews with stakeholders to find out their views about a donated databank, we will use the findings of the focus groups to design and carry out a larger survey of stakeholders (patients and members of the public; clinicians; information governance leads and research ethics committee members; and NLP researchers) to explore people’s attitudes in more detail and seek their views on key areas including acceptability and concerns around establishing, managing, accessing and using the databank. Study findings will provide valuable insights into the acceptability of a free text databank for research and inform potential next steps for establishing a national, funded databank for use by the research community (lead Natalie Fitzpatrick, UCL).

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