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Public consultation to inform and support the ethical approval and governance process for the use of CogStack for EHR Research

Workshops and Focus Groups1 min read

A response from the CogStack clinical and academic research team to a discussion on issues concerning consent and use of health data for research. The CogStack team argues that service user and stakeholder consultation is key for future development and management of any model using health data for research. Full report published in the journal of medical ethics.

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See It on Your Own Data

Talk to the team about what CogStack could do inside your environment.

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All Patient Involvement

More Patient Involvement

All Patient Involvement

Workshops and Focus Groups

Artificial Intelligence Showcase: AI, Genomics and the Patient Journey 2024

CogStack’s October symposium: Artificial Intelligence Showcase: AI, Genomics and the Patient Journey, delves into aspects of AI use in healthcare, how it is applied and how this can benefit patients and clinicians. Leaders of patient representation groups will discuss the transformative potential of actively involving patients and the public in clinical research, effective implementation strategies, and the impact on research quality and patient outcomes. Find out more and register.

Workshops and Focus Groups

Donated Databank of Clinical Free Text

Building on our previous work which involved a series of focus group interviews with stakeholders to find out their views about a donated databank.

Workshops and Focus Groups

Donated databank of clinical free text to develop and train NLP tools for research

The research team carried out a series of stakeholder in-depth focus groups interviews, including patients and members of the public

Workshops and Focus Groups

Workshop on attitudes to the creation and use of artificial health records for research

Including synthetic text, held in conjunction with the NIHR Maudsley BRC.

Education & Training

HealTAC Patient & Public Involvement Advice Clinic “Patient and Public Involvement and Engagement (PPIE): Hands on Guidance for Clinical Text Analytics”

PPIE plays a vital role in helping to improve research and is now a crucial part of funding applications.

Education & Training

HealTAC Panel Session “How does PPIE add value in text analytics research?”

In this special panel discussion, four different stakeholders discussed how patient and public involvement adds value to research using health care text analytics and natural language processing.