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South London and the Maudsley (SLaM) Clinical Record Interactive Search (CRIS) service user groups

Patient-led Committees and Governance1 min read

The research team regularly seeks input and advice from the SLaM CRIS service user groups and expert patients from the CogStack oversight group who review draft grant applications (e.g. AI Award, Round 2, Phase 3 draft application).

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All Patient Involvement

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Patient-led Committees and Governance

University Hospitals Birmingham NHS Trust PIONEER Data Trust Committee

The committee consists of a group of patient and public members who review all data access requests, provides public oversight of data access decisions and reviews draft grant applications.

Patient-led Committees and Governance

Guy ’s and St Thomas’ Electronic Records Research Interface (CRAG) committee

Similar in function and structure to KERRI, the CRAG committe reviews, CogStack @ GSTT clinical research projects, providing PPIE steering governance and oversight of usage of NLP on GSTT data within CogStack.

Patient-led Committees and Governance

King’s Electronic Records Research Initiative (KERRI) committee

South London and the Maudsley: The KERRI committee consists of 3 leading institute clinicians, 1 clinical director for data science and 3-4 patient representatives and meets every 2 months to review projects.

Workshops and Focus Groups

Artificial Intelligence Showcase: AI, Genomics and the Patient Journey 2024

CogStack’s October symposium: Artificial Intelligence Showcase: AI, Genomics and the Patient Journey, delves into aspects of AI use in healthcare, how it is applied and how this can benefit patients and clinicians. Leaders of patient representation groups will discuss the transformative potential of actively involving patients and the public in clinical research, effective implementation strategies, and the impact on research quality and patient outcomes. Find out more and register.

Education & Training

HealTAC Patient & Public Involvement Advice Clinic “Patient and Public Involvement and Engagement (PPIE): Hands on Guidance for Clinical Text Analytics”

PPIE plays a vital role in helping to improve research and is now a crucial part of funding applications.

Education & Training

HealTAC Panel Session “How does PPIE add value in text analytics research?”

In this special panel discussion, four different stakeholders discussed how patient and public involvement adds value to research using health care text analytics and natural language processing.